Parkinson's Disease Caregivers

Today I am going to write about caregivers of people with Parkinson's. As usual when I decided this was the topic I wanted to write about I did some research on the Internet to see what sites and information already exists in the ethernet. To my surprise there was remarkably little information and only a couple of sites that seemed to focus on the caregiver at all. Now, I think that is something that I will have to work to change in the future. Obviously I will not change that in one blog posting so I will not try.

The one site I came across that seemed to have a lot of information and a good forum for caregivers and/or patients to share information is:

www.myparkinsons.org

This site has some useful information for caregivers, links to MANY other parkinson's sites, but what seemed the most useful in my mind was the forum. There were numerous postings and it definitely appears that the site has a true community that will try to answer questions that you have.

I personally think that caring for someone who has PD must be very difficult, especially as the patient's health begins to decline. My Mom has PD and my Dad is the primary caregiver so I do not know exactly how tough it is, but I am sure it is not easy.

In general the caregiver information out there all seems to say the same thing: get informed, stay informed, and make sure to take some time for yourself as well. I think that is all good advice.

To all the caregivers I wish you luck and salute you for your fight against Parkinson's Disease in whatever way you do it.